Here is a little list I compiled when I was researching my pain associated with tender lipomas and nerve pain that would shoot down my leg, (sciatica but much more painful) when I would put any pressure on them. This led me to an ER twice and no one in the medical field would even consider the lipomas being a cause or part of the cause, which makes no sense because there are painful lipomas, and they are removed when putting pressure on the nerves. How can a doctor look at a person with a straight face and say it’s impossible that the lipomas have even a chance of being related to the pain?
After doing research, I also came across articles about non-steroid induced Cushing’s disease or syndrome. Basically, a symptom is having a large amount of fat in the lower back and/or around the spine -- SEL or Spinal Epidural Lipimatosis. Again, this is fat, which causes pain, is medically acknowledged, but no doctor even mentioned it, even though my MRI report stated it was a possibility.
Generally, steroid users end up with similar symptoms, whether from abuse or for asthma. Steroids are the usual suspect, but, like I mentioned earlier, there is a non-steroid form with the same symptoms. From what I read, there are a few simple tests that could indicate whether it’s your body causing the issue. Search, search, search, and don’t let anyone tell you that you can’t trust anything from the Internet, because they are wrong. The Internet allows us to cross reference information, even from valid medical publications, universities and more. That is how I got most of my information.
These are names that have been used to describe back lipomas, and year they were documented. You will notice many of them are used throughout the list. I left the titles exactly as I found them, so don’t get confused with all the different names used. (Just another example of the medical field not coming to a consensus of what something is and how to treat it), also the fact that we are all individuals and our bodies change with time, so what may work one way for someone one year may not in the future and may not work at all for someone else.
Also, what is “found” can be more than one thing or complete opposite things with similar symptoms and characteristics. Either way, the more knowledge a person/patient has, the more empowered they feel :
Names used: Episacraliliac Lipoma, 1937; Fibrositis, 1944; Lumbar and gluteal fibrositis, 1947; Multifidis triangle syndrome, 1955; Sacroiliac lipimata, 1966; Episacroiliac lipoma, 1972; Iliac crest pain syndrome, 1991; Back Mouse, 1993; and Lumbar hernia and Lumbar fascial fat herniation.
Here are some articles, abstracts, excerpts, etc: “5 Things You Need To Know About Lipomas; 2013 -- “Episacral lipoma: a treatable cause of low back pain”; 2013-- “Epidural lipomatosis: A dilemma in interventional pain management for the use of epidural Steroids”; 2013.
Adiposis dolorosa (Dercum’s disease): MRI and ultrasound appearances.
2013
Adiposis dolorosa - Dercum’s disease: Painful Lipomas
2013
Thoracolumbar Fascia: The Forgotten Culprit of Low Back Pain
2013
Chronic Low Back Pain and the Thoracolumbar Fascia
2013
What Doctor Do You See to Have a Episacroiliac Lipoma (A.k.a. Back Mouse) Removed from the Lower Back?
2013
Back Mouse? NO…, you DON’T hire a exterminator to treat this.
2012
New findings for the treatment of chronic, nonspecific low back pain Issue
2012
The Frequency of Episacral Lipoma
2012
Review of Dercum’s disease and proposal of diagnostic criteria, diagnostic methods, classification and management.
2012
Giant cell tumour with a lipoma of the sacrum
2012
Evaluation of the Efficacy of Injection Lipolysis using Phosphatidylcholine/Deoxycholate Versus Deoxycholate Alone in Treatment of Localized Fat Deposits
2012
Lipoma - Skin Lumps
Treatment: Steroid Injections
2011
Lipoma-Associated Neuropathic Pain: A Report of Two Cases
2011
Skin Lumps
2011
Acupuncture For Lipoma
2011
Lecithin and Lipoma
2011
Degenerative magnetic resonance imaging changes in patients with chronic low back pain.
2010
Inferior lumbar triangle hernia as a rarely reported cause of low back pain
2010
Iliosacral Nodule Induced Pain of the Lower Back - A Forgotten or Often Overlooked Cause of Lower Back Pain
2010
Lipoma - MayoClinic
2010
Lumbar hernia
2010
Inferior lumbar triangle hernia as a rarely reported cause of low back pain: a report of 4 cases
2010
Lumps in the Low Back - The lump is a back mouse
2010
About the movable lumps - Pain In Lower Back, Movable Small Lumps - What they are is a “back mouse”
2010
The “Back Mouse” or Back Mice
2010
Ultrasound features of deep-seated lipomas
2009
Ultrasound evidence of altered lumbar connective tissue structure in human subjects with chronic low back pain PDF
2009
Lumbar hernia misdiagnosed as a subcutaneous lipoma.
2004
Soft-tissue lipomas: accuracy of sonography in diagnosis with pathologic correlation.
Book: 2004
‘Low Back and Neck Pain: Comprehensive Diagnosis and Management’ - “Sacroiliac Pain”
2004
Intradural Spinal Lipoma: Report of A Thoracic Case and A Lumbar Case PDF
2004
‘Treasures in the attic,’ by Dr. Peter Curtis PDF
2004
Chiropractic treatment of the back mouse. Dr. Bond (Note: Duplicate of earlier article: Low Back Pain and Episacral Lipomas. Dr. W. David Bond Dynamic Chiropractic – September 4, 2000, Vol. 18, Issue 19, 2003 written/2004 published The Problem With The Back Mouse - Diagnosing and Dealing with Episacroiliac Lipoma Dr. W. David Bond
2003
Iliac nodular disorder. Thoracolumbar syndrome and associated topics.
2001
Low Back Pain (LBP) - Causes of low back pain Pathoanatomic Diagnoses in Mechanical LBP
2000
Fibro-fatty nodules and low back pain. The back mouse masquerade.
2000
Treatment of low back pain associated with “back mice’’: a case series.
2000
Low Back Pain and Episacral Lipomas. Dr. W. David Bond
2000
Fibro-Fatty Nodules and Low Back Pain. The Journal of Family Practice Online
1996
Nonspecific low back pain in general practice: a delicate point - A descriptive study on the clinical relevance of four regional pain syndromes PDF
1993
In Search Of The Back Mouse
1983
Hernia of the inferior lumbar space. A cause of back pain.
1978
Tumours of the cauda equina. PDF
1975
Subcutaneous Lumbosacral Lipomas. C.F. Kieck, Dr CF KIECK
PDF
1967
Lumbosacral lipomas: critical survey of 26 cases submitted to laminectomy PDF
1966
Another cause of low back pain: lipomata in the sacroiliac region.
1965
Lipoma of the Cauda Equina PDF
1961
Sacroiliac (Episacral) Lipomas
1956
Soft tissue lesions as cause of low back pain: Anatomic study
1954
Herniation of fat through lumbodorsal fascia as a cause of low-back pain.
1952
Subfascial fat herniation as a cause of low back pain; differential diagnosis and incidence in 302 cases of backache.
1950
Episacroiliac Lipoma as a Cause of Low-Back Pain
1949
Fibro-fatty Tissue and its Relation to “Rheumatic” Syndromes
1946
Herniation of Subfascial Fat as a Cause of Low Back Pain: Report of Thirty-Seven Cases Treated Surgically
1946
Herniation of subfascial fat as a cause of low back pain; results of surgical treatment in 31 cases. Hertz R.
1946
Discussion of the Paper by Ralph Herz : Herniation of Subfascial Fat as a Cause of Low Back Pain.
1934
Adiposis dolorosa
Adiposis dolorosa, also known as Dercum’s disease is a rare condition characterized by multiple, painful lipomas.
1916
Lumbar Hernia
Annals of Surgery 1916 May.
Edward H. Goodman and John Speese
Grynfeltt (I866) was the first to give the subject deep thought, and described the space which bears his name.
The first trustworthy observation on record is that of Garangeot (1731), who mentions a case of strangulated hernia
Dolee (1703) knew of lumbar hernia, but he, like his predecessors, took no pains to study its anatomy or its mechanism
(I672 or I687) that we find what seems to be the first description of lumbar hernia. Paul Barbette at this time states that, “Experience has taught me that the peritoneum may rupture in its posterior aspect toward the back, thus forming a hernia.”
The hernia is generally subcutaneous but may be separated from the skin by a layer of fat or muscle.
Corey Mondello
Boston, MA
P.S.: My last MRI, Dec 2013, not only revealed Epidural Lipomatosis, (lipomas in lower back), which may be pressing on my nerves, but also that I have Spondylolisthesis, which looks scary, oddly though, some people, actually most people feel little pain from the literally broken back health issue. So again, we are all individuals and the medical field needs to recognize this!