I landed on this page while trying to figure out why I had a reaction today to Betadine. I was born with urinary reflux and had to have many IVPs (intravenous pyelograms) throughout my childhood. Early on, I had a strong reaction when they injected the contrast medium. I had instant, non-stop sneezing, burning swollen eyes, swollen tongue and throat leading to difficulty breathing. At that point they labeled it an "allergy" and started to pre-treat me. I believe it was with antihistamines but I'm honestly not positive.
A few years after the first reaction, my scheduled test, normally performed by my urologist, was carried out by two interns instead because my doctor was called away for emergency surgery. They did not pre-treat me and my questioning was dismissed as a confused child. Right after injecting the contrast medium it happened all over again: sneezing, burning eyes, swollen face/tongue, etc. They injected something and it did nothing. It continued to progress and my throat started to close. At that point they rolled me over and slammed an injection of something (steroids, epinephrine? I don't really know) into my behind and my breathing slowly returned to normal.
Over the years, I've told each doctor or hospital health care provider that I "react strongly" to the dye that was used on those procedures in the 60's, 70's, early 80's. Every single time I end up with the extra wrist band with allergy: IVP DYE. Not my words, but theirs. If it is more of a sensitivity and not an allergy, then I assume they label it that because it immediately gets people's attention and perhaps the words "sensitivity" or "reaction" don't consistently garner the same level of caution and care. I don't care what they call it as long as they pre-treat me or use something else.
I was never given any warnings about other cross sensitivities. I eat seafood, occasional shellfish, and I have had things like Betadine used on me repeatedly without a problem until today.
Before starting my procedure, there was much debate among my doctor, the anesthesiologist, and the two nurses. They weren't sure whether it was wise to use the Betadine. Since I had no memory of ever reacting to it they decided to go ahead as the doctor felt it was the most effective choice.
As I was coming out of the general anesthesia, I woke up sneezing my head off. My eyes were burning and swollen, and my face was swelling but not alarmingly. I was given two Benadryl and told to call if things worsened.
The sneezing continued, I developed a headache, and I took two more Benadryl (as instructed) when it was time. My facial swelling and the eye burning slowly improved, but they're still irritated and itchy and I am still sneezing 14 hours later and my throat hurts -- kind of like someone punched me in the neck. On top of that, I'm one of those oddballs who doesn't get sleepy using antihistamines. Instead they make me feel "hyper" for lack of a better word.
Despite general anesthesia, two meclizine at the hospital, four Benadryl, and a prescription for insomnia, I am still wide awake at 2 a.m.
They had a lot of difficulty getting my IV line in. They tried over 10 times on one hand and wrist without success until they switched to the right. The left was a mess so they cleaned it with Betadine and bandaged the whole thing because I was still having quite a bit of breakthrough bleeding despite the pressure bandage attempts on individual sites. After removing those tonight, I now see that I also have two itchy, swollen, red steaks on my left hand next to the injection site they tried the most. I am also experiencing itching and discomfort in the southern area of my performed procedure.
Based on my childhood reactions to IVP dye, is this Betadine reaction related or not? Do I now need to be cautious and claim a Betadine sensitivity despite it being considered the best choice? If it is a reaction to a binding molecule, as some have posted, is that why the sudden reaction to the Betadine -- perhaps just a different formulation that what has been previously used on me? Also, if it's not iodine itself, how do I know whether a future contrast dye or site prep solution will cause a reaction or not? Are there safe options or are my only choices to avoid them or opt to pre-treat before any of them are used?
I have a brain MRI (with and without contrast) and a uterine ablation coming up, so I will be facing these situations again soon.
I realize this has become a heated debate and people are sensitive to being told they don't have a technical allergy to something that threatened their well being and even their very life. I think some of the professionals could make more of an effort to explain without criticizing or condescending. Many of the posts are using the word allergy because that is the word their doctors and other health care workers are using.
I would hope the healthcare industry would try to come to a conclusion about approach, identifying the problem, effective treatment, and the consistent vocabulary used. If the people treating patients are going to continue to label it an allergy, then that is what patients will continue to call it. The onus is on the healthcare industry to change conversation and approach.
I'm truly sorry for the fear, loss, and damage that anyone has suffered. Regardless of the vocabulary or treatment approach, it still needs to be addressed and you, as the patient, are your own best advocate. Never be afraid to speak up and insist on a mutually satisfying resolution.
Ultimately, healthcare is a service industry -- highly educated and to be respected, but still performing a service for you. If you are not happy with the "service", move on to someone or someplace else where feel you are a partner in your healthcare -- not dismissed, but instead heard. Allergy, sensitivity, or reaction -- it's still a scary and confusing thing to deal with and I wish everyone the very best.